Other key policy areas/campaigns
NSF for Long-term Neurological Conditions
The National Service Framework (NSF) for Long-term Neurological Conditions was published in March 2005. The NSF is to be implemented over a ten-year time-scale. The MND Association is concerned that the NSF lacks teeth, as it contains no targets or timescales. It will be down to individual Primary Care Trusts and social services to implement it. For further information please click here
Mental Capacity Act 2005
The Mental Capacity Act governs decision-making on behalf of adults, where they lose the capacity to make or communciate a decision at some point in their lives or where the incapacitating condition has been present since birth. There are many parts to the Act. The MND Association are particularly interested in the proposals for Lasting Power of Attornies, living wills and the Draft Code of Practce. For further information please click here
Assisted Dying
There have been several attempts over recent years to try and get some form of Euthanasia/ Assisted Dying Bill introduced. The last was in early 2006 as a Private Members Bill by Lord Joffe. This was a Bill on Assisted Suicide that was defeated. Now Lord Joffe will have to try and reintroduce the Bill in this Parliament. How successful he is will depend on whether or not the Government will allow time for the Bill. For further information please click here
Benefit Provision
Disabled people often have difficulty accessing benefits that they are entitled to due to lack of knowledge, poor and inconsistent advise given and lack of information. For further information please click here.
Latest Press Releases
- Briefing on palliative care
- New policy position on human/animal hybrid embryos welcomed
- Gordon Brown promises meeting
- Final posters signal the end of John’s Journey
- Caring for carers – Gordon Brown hosts reception to recognise unsung heroes
- Ban lifted to allow human - animal embryos
- Remember people with MND – message to next Prime Minister
- Ban on hybrid and chimera embryos is unacceptable
- MND research to benefit from donated eggs
- Another Tool In MND Association’s Political Armoury

