Press Release

HEALTH MINISTER PRESENTED WITH THE CASE FOR £7.5 MILLION FOR MND RESEARCH

02 November 2006

The MND Association has presented its case to Health Minister Andy Burnham MP for £7.5 million for research into Motor Neurone Disease.

Kirstine Knox, Chief Executive of the MND Association, officially handed over a business case supporting the funding request at a reception at the Houses of Parliament yesterday (Wednesday).

Mr Burnham also met people with MND at the reception, which was hosted by the All Party Parliamentary Group on MND and attended by more than 40 MPs and Peers. Many of these added their names to an Early Day Motion (EDM) calling for greater Government funding for MND research.

The reception also marked the Parliamentary launch of the MND Association Research Foundation, which aims to raise £15 million to further research that will bring about an end to MND, which kills three people each day in the UK.

The MND Association has pledged to raise half of this sum over the next five years, and wants the Government to match this by ring-fencing £7.5 million specifically for MND research.

Lembit Öpik MP, who is vice chair of the All Party Parliamentary Group and President of the MND Association, pressed the case further at Prime Ministers’ Questions, held earlier the same day in the House of Commons.

The Prime Minister, Tony Blair MP, commended the Association and Lembit for the work being done to raise money for research and said that Mr Burnham and the Department of Health would look seriously at the proposal.

Afterwards, Mr Blair received a copy of the research business case from Dr Knox, Mr Öpik and other representatives of the MND Association.

Dr Knox said: “MND is no different from any other disease for which science has found a cure. But in order to do this for MND, there needs to be much more money for research.

“The support of the Prime Minister is crucial to helping us secure the £15 million we need to invest over the next few years. Our business case is robust and I look forward to hearing Andy Burnham’s response.”

Mr Blair received a copy of the research business case from Dr Knox

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